This book, published by me in April 2010 relates my personal experience of Haemochromatosis
by Alan Mannering
This
website contains facts, information and personal experiences
of haemochromatosis
Why would an ordinary guy like me decide to write a book on genetic haemochromatosis? I am not a doctor nor a professional writer - but following a talk I gave in London on my past experiences over almost twenty years, the seed was sown. It does indeed seem to be a bit of an anomaly especially as I tend to be a rather frivolous guy always with a eye on the humorous aspects of life.This begs the question of why does a non serious chap like me want to write on a very serious and little known subject? The reason is my continued determination to spread the word far and wide about this life-threatening illness that is so often overlooked and misunderstood by medical attendants. Having said all this, one might ask what qualifications have I to write this little book. On paper none but I have lived with this illness for a long time and have researched it closely, including visits to two symposiums at Cardiff University Hospital, travelling to a conference of the Iron Disorders Institute at Washington and being chosen to represent haemochromatosis at the Discern Genetic Project team in association with Oxford University. I abm also one of the longest standing members of the British Haemochromatosis Society and have maintained my own personal website for some 15 years, from which I have answered many questions from confused and sometimes distressed correspondents. My little book is not a text book nor a do it yourself medical book, but I have tried to make it a light hearted account of some of my experiences; some of them amusing as in my experiences with Hypogonadism (sexual dysfunction) and more disturbing problems with Irritable Bowel Syndrome and just a hint of an earlier drink problem. The book contains a useful glossary together with details of international help and information organisations. Alan
The Iron Disorders InstituteGuide to Hemochromatosis
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The Hemochromatosis Cookbook
This book has been my bible and reference book for many years and I have never found another book that is so clearly written and so well structured as it deals with many problems through case studies and has a comprehensive index. This is the only book once offered for sale by the British Society. It is authoritative and well written and I would not be without a copy.
I have always enjoyed cooking but I was a little bit phased when I realized that I would have to cook differently to limit my iron intake. Cheryl Garrison's book, has been a great help to me in keeping me focused on this dietry requirement. Cheryl's husband suffers from our complaint and Cheryl whom I have known for several years, has worked intensely to find tasty and interesting low iron dishes. She is rather an authority on G.H. and ran a lively forum for the Iron Institute of America.
Why would an ordinary guy like me decide to write a book on genetic haemochromatosis? I am not a doctor nor a professional writer - but following a talk I gave in London on my past experiences over almost twenty years, the seed was sown. It does indeed seem to be a bit of an anomaly especially as I tend to be a rather frivolous guy always with a eye on the humorous aspects of life.This begs the question of why does a non serious chap like me want to write on a very serious and little known subject? The reason is my continued determination to spread the word far and wide about this life-threatening illness that is so often overlooked and misunderstood by medical attendants. Having said all this, one might ask what qualifications have I to write this little book. On paper none but I have lived with this illness for a long time and have researched it closely, including visits to two symposiums at Cardiff University Hospital, travelling to a conference of the Iron Disorders Institute at Washington and being chosen to represent haemochromatosis at the Discern Genetic Project team in association with Oxford University. I abm also one of the longest standing members of the British Haemochromatosis Society and have maintained my own personal website for some 15 years, from which I have answered many questions from confused and sometimes distressed correspondents. My little book is not a text book nor a do it yourself medical book, but I have tried to make it a light hearted account of some of my experiences; some of them amusing as in my experiences with Hypogonadism (sexual dysfunction) and more disturbing problems with Irritable Bowel Syndrome and just a hint of an earlier drink problem. The book contains a useful glossary together with details of international help and information organisations. Alan